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OMG.......I DID ASK FOR MS. and I worked like dog to get everything I do have. then this freaking disease hit me. I NEVER WANTED A HANDOUT. I worked, I gave to charities, I did what I could for others. Now that I have MS I need help and if you think there is a lot a help out there for us...there ISN'T. or I have not found it. Try living in a body that won't do what you want it to, try living in extreme pain 24 freaking hours 7 days a week. Try paying for the scripts that are over 225 dollars a month and they really don't help. and after paying into the system for all the years I did......my disability benefits are not a hand out, but my money that I put into in. Maybe after 10 to 15 years being on ssd ( which I have only been on for 5 years) it might...just might be from some one else...but I could be dead by that time. What about the people that died before they could use their benefits where is all that, the family never got it. Don't forget all the years you have to wait to get on the disability and you are not allowed to have any money or you don't qualify and you left wondering where am I going to get the food to put on table, have roof over my head, or having a freaking social security person tell well...there are always shelters you can go to. ( I worked too hard to end up in a shelter for a disease I did not ask for ) SO I DESERVE MY FREAKING BENEFITS, I DESERVE A WARM PLACE TO PUT MY HEAD DOWN AND SLEEP. I DESERVE FOOD TO PUT ON MY TABLE. you think it is easy being poor? try it for 3 years while your waiting for benefits, while your waiting for your own money from the government. NOT a pleasant place to be. NO ONE WANTS A CRIPPLING DISEASE. NO ONE WANTS TO BE SICK ALL THE TIME. I did work, I did create my own opportunities THE DISEASE TOOK IT ALL AWAY FROM ME. SO TELL ME......WHAT DO WE DO NOW????? BY the way that is a great quote from President Kennedy but lets put a ps on it and say ask what can we do together.
MS Mermaid....I feel the same way you do. I also have MS and I am on disability, it really sucks. I wish I could go to work my disability benefits do not let me live at all. I am at the bottom of the food group. I have nothing and no one to help me. At time I feel the government and maybe other people who think I am in those 47 percent ( which I am not...I have worked hard for what I have...and at this point I would gladly trade bodies with anyone who is " normal " and let them feel who I feel for a day.) but I suspect that they would rather me die because it would cheaper for them and everyone else. I am trying so hard to at least get to the poverty level and maybe have someone help me get a little house but because you have to wait forever before you get on disability my credit was shot to hell. NOW TRY TO REBUILD IT........YOU CAN'T it is so freaking hard with the benefits I DO receive. I have love everything, my dignity, my self respect , my pride. Try standing in a church line begging for food. not a happy place to be in. I quit going because I could not take it anymore. SO I do without. MAYBE.....JUST MAYBE IF SOMEONE WOULD OFFER A LITTLE HELP... I could get some of pride, my dignity , my self respect back. at a price I can afford. Then I could be an contributing AMERICAN ......A DISABLE AMERICAN that can contribute to my beautiful country and my fellow AMERICANS.